At the beginning of 2011 I wrote this:
"It is now the end of January, and Josiah is doing so well. The scar from his surgery becomes less visible by the day, and it doesn't bother him at all that he is down to 2/3 of his right lung. The stroke and hydrocephalus are doing well - his neurologist says that he has never seen such perfectly consistent head growth and he isn't functioning any differently than any other 6 month old with Down's. Actually - the damage left by the stroke seems to be disappearing when viewed by ultrasound. He doesn't need to be on any medication for the blood disorder. The heart will most likely need surgery to repair it within the month, as the two medications he is on are slowly becoming less effective. And he has tripled his birth weight - he is up to 12lbs, 8 oz."
By March Josiah's doctors had decided that it was time to repair his heart, as the 7 doses of medication he was taking per day were not helping him much any longer. God was good to us and allowed us to have such peace throughout the day of his surgery. He had open heart surgery and by a week later was home because everything was going so well!
In the spring we decided that his neurologist was frustrating us too much- ordering too many tests he never looked at or forgot he ordered, making us wait over an hour consistently past his appointment times, etc. So we switched to a doctor at Chldren's.
She ordered her own head MRI/MRA. When she called us with the results we were floored. The Corpus Callosum- the bundle of nerves that medically would never grow- was ALL THERE.
Did you catch that?
It was ALL THERE. Can you say miracle?
From that day until this one things have been much quieter, and I can't say I am disappointed in that fact. God is good to us, so much more than we deserve. All praise to HIM!
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